- Birth Defect Research for Children - find out how to receive information on child birth defects and associated topics.
- National Center on Birth Defects and Developmental Disabilities - promoting the health of babies, children, and adults, and enhancing the potential for full, productive living. Part of the Centers for Disease Control.
- Teratology Society - members study the causes and biological processes leading to abnormal development and birth defects at the fundamental and clinical levels, and appropriate measures for prevention.
- Save Babies Through Screening - works to improve the lives of babies by preventing disabilities and death resulting from disorders detectable through newborn screening. Formerly the Tyler For Life Foundation.
- Birth Defects Foundation - UK-based charity with a mission to improve child health, aid families, and create awareness of child health challenges.
- National Birth Defects Prevention Network - mission is to establish and maintain a national network of state and population-based programs for birth defects surveillance and research.
- Genesis Fund - provides funding for the diagnosis and treatment of children born with birth defects, mental retardation, and genetic disorders.
- European Teratology Society (ETS) - dedicated to the prevention of adverse effects on reproduction and development and the exchange of information about the etiology, prevention, and treatment of congenital malformations.
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